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Crosses came in one after the other, but the Lord’s mercy never failed this family!
I gave birth to my firstborn ten years ago, and we were overjoyed! I still remember the day; we were so glad to know that it was a baby girl. I couldn’t thank the Lord enough for His blessings upon my family. Like every mother, I dreamt of buying cute frocks, clips, and booties for my little doll. We named her ‘Athalie,’ meaning ‘God is exalted.’ We were praising God for His beautiful gift.
Little did we know that our joy would soon be turned into a deep heartache or that our prayer of gratitude would soon be replaced with petitions for His mercy for our precious baby.
At four months old, she became severely sick. With multiple seizure attacks, she would cry for hours and couldn’t sleep or feed well. After multiple tests, she was diagnosed with brain damage; she was also suffering from a rare kind of severe childhood epilepsy named ‘West Syndrome,’ which affects one in 4,000 children.
The diagnosis was too shocking and heartbreaking for us. I didn’t know how I could face the storm. I wanted my heart to be numb to the emotional pain I was going through. Many questions ran through my mind. This was just the beginning of a long and painful journey that I was never prepared to take. My baby girl continued to suffer from seizures for almost two and a half years. Doctors tried multiple medicines, painful daily injections, and numerous blood tests. She would cry for hours and all I could do was to ask for God to bestow His mercy on my child. I felt helpless for not being able to comfort her in any way. Life felt like a deep and dark pit of agony and despair.
Her seizures eventually subsided, but she suffered global developmental delays. As her treatment was progressing, another shocking news rattled our family. Our son Asher, who was having speech delay and behavioral issues, was diagnosed with high-functioning autism at the age of three.
We were on the verge of losing hope; life felt too overwhelming for us as new parents. No one could understand or feel the pain we were going through. We felt lonely and miserable. However, this period of loneliness and the painful days of motherhood brought me closer to God; His Word provided solace to my weary soul. His promises, which I was now reading with a deeper meaning and fuller understanding, encouraged me.
It was during this difficult season of my life that God enabled me to write faith-filled and encouraging blogs for people going through challenges and suffering similar to mine. My articles, birthed from my daily devotions, shared the challenges of special parenthood and included my life experiences and insights. God used my words to heal many aching souls. I am truly grateful to Him for turning my life into a useful vessel for His love.
I would say that the despair of our daughter’s sickness solidified our family’s faith in God. As my husband and I ventured onto the unknown path of this unique parenthood journey, all that we had to cling to were the promises of God and the faith in our hearts that God will never leave nor forsake us. What once appeared like heaps of ashes began to turn into beauty of strength as God extended His grace, peace, and joy to us during the most heart-wrenching and dark season of our life. In the loneliest moments, spending time at His feet brought us renewed hope and the courage to move ahead.
After years of treatment and unending prayers, Athalie’s seizures are now controlled, but she continues to have a severe form of cerebral palsy. She can’t talk, walk, see, or sit by herself and is completely dependent on me. Having recently moved from India to Canada, our family is currently receiving the best treatment. A substantial improvement in her health is making our lives more colorful.
Asher is out of the spectrum, and he has caught up completely on his speech. After many schools had initially rejected him because of his inattentiveness, I home-schooled him till grade five. Though he shows a few traits of ADHD, by God’s grace, he is now enrolled in grade six in a private Christian school. He is a book lover who shows a unique interest in the solar system. He loves learning about different countries, their flags, and maps. Though life is still filled with challenges, the love of God is what makes us parent our children with love, patience, and kindness.
As we continue to embrace the hope we have in Jesus and travel through this unique path of special-needs-parenting, I believe that there are times when we have answers to our prayers right away, and our faith works and produces results. In those times, God’s strength and power are revealed in what He does for us—the sure answer to our prayers.
On other occasions, His strength continues to shine through us, enabling us to endure our pain with courage, letting us experience His loving mercies in our difficulties, showing us His power in our weaknesses, teaching us to develop the ability and wisdom to take the right steps ahead, empowering us to tell stories of His strength, and encouraging us to witness His light and hope amidst our challenges.
Elizabeth Livingston is a writer, speaker and blogger. Through her inspiring write-ups, many have been touched by the healing love of God. She lives with her husband and two beautiful children in Kerala, India. To read more of her articles visit: elizabethlivingston.in/
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